And the Damage Done: Hemochromatosis recap

The following is a recap of things I have learned from my partner's experience with hemochromatosis, a.k.a iron overload. I wrote this up for a support forum which is private, but I thought it would be helpful to make it available to anyone looking for information on this insidious condition. BTW, the circle+arrow symbol on the left is the alchemical symbol for iron, and yes, it is the same symbol that is used for the planet Mars and for the male of the species (I'm not going to touch that one, I have a hard enough time avoiding "ironic" puns when writing about this stuff).

[Disclaimer: I am not a doctor. Seek medical advice before acting on, or drawing conclusions from, anything I say here. By all means Google this stuff, but do so sensibly (check the bona fides of the folks writing what you read, distrust any site that is selling a cure, and look for the HONcode which is a good sign).]

When blogs or online forums mention hemochromatosis, also known as iron overload, they often leave you with more questions than answers. This is not surprising because hemochromatosis is widely misunderstood (and widely under-diagnosed e.g. if you know someone who has been diagnosed with chronic fatigue or fibromyalgia you really should check out hemochromatosis--if untreated it can kill).

You often hear "hemochromatosis can be treated" as though that was the end of the story. Not so...

Good Food and Drink on the Road

Recently it occurred to me that over the years I have recommended, via blog posts, comments and tweets, a fair number of places to eat, places that are scattered around the country, places that folks who are on the road might like to know about. I figured I would start rounding round them up here. And here are the first two:

City Coffee Company, St. Augustine, FL: Written up in this blog post. Best coffee on the north side of town. Great bear claws and breakfast burritos. Free WiFi of course (a good thing because there is no 3G in St. Augustine at this point and the Edge signal is pretty weak on the north side of town.

Stage Coach Coffee, Cooperstown, NY: I have tweeted this several times. Best decaff latté on the planet. And the most unusual signature French Toast. Seen in the iPhone snapshot on the left, this is "Vanilla Bean Crème Brûlée French Toast." Totally delicious and very filling. As served at the 2009 Baseball Hall of Fame induction ceremonies.

More to come...

Hey 19: Things to do when promoting a cause or company, product or person, band or brand

This is a quick attempt to put into one place various bits of advice that I've been giving out to various people over the past few months with respect to raising the profile of a person, place, or thing.

The idea is that you have something you want to publicize. It could be a band, a brand, a product, a company, or an indie film; or it could be you.

Before you go out and hire a PR agency or pay for a press release, you might want to try these things. They are free, except for your time and an Internet connection. In the old days they would have been called guerilla marketing. Now it's called Web 2.0 marketing or New Rules marketing. The strategy is to create interest--in whatever you are promoting--by being interesting. You want to draw people to the object of attention rather than subject them to a message. I will try to post something later on how to be interesting. The following are 19 things to get started with. I've broken them down into 3 phases:

Make Your Money Way More Interest-ing: Put it in a Kiva account

Instead of leaving money sit in a zero interest checking account, why not put it in a Kiva account. Kiva accounts generate loads of interest, of the human kind. Consider this:

I just loaned some money to a woman in Ghana who is seeking to expand her business. She makes rice and stew and sells it by the side of the road to help pay for her children's education. By borrowing money from a community bank she can buy ingredients in bulk and get a better price and thus a better margin. With that margin she can hire another person and double the output and revenue. How interesting is THAT!

When she repays the loan then my money is available to me for withdrawal or I can choose to loan it to someone else. I don't earn financial interest on this money, but it makes my money way more interesting. Consider this:

I opened up a business account with Bank of America about 5 years ago. For the last 8 months there has been about $500 in the account because that business does not do much business these days (these days I have a day job). So each month Bank of America charges me $13.00 simply for operating the account. On an annual basis that's more than 30% interest, just for letting money sit there. They don't even have to send me paper accounts. So now I'm taking half that money and putting it into Kiva (the other half is paying down a credit card balance).

During these tough economic times it's easy to think that we have no spare cash, no extra money. But I bet a lot of people have small amounts of money lying dormant, either earning no interest or actually costing interest in the form of maintenance fees. How much more interesting to lend that money to someone who can put it to work. Your money is relatively safe, is not incurring fees, and is potentially transforming lives.

Go Kiva!

CQM

iPhone Camera Impresses

As I wait to upgrade my iPhone to the newly released 3.0 version of the operating system (over 200 megabytes worth of download) I continue to be impressed with the camera on my iPhone 3G. The other morning I snapped this shot of Layla on our daily walk. Sometimes the effect of using a lower resolution digital camera, such as you get on a mobile phone, is almost 'painterly' in the way resolves complex images into pixels. If you click this image you will get an expanded view, which [IMHO] is still pleasing despite the lack of resolution.

Flying Launch Pad Cruises New Mexico Skies

Couldn't resist blogging this story as it shows progress towards commercial space travel has not been stopped by the recession. Not to get all philosophical and stuff but I think that leaving planet Earth is where evolution is headed.

I'm not saying all Earthlings will relocate to another planet or planets, but some will. And of course, that could make Earth a more accommodating place for those who stay behind. At some point in the future there will be humans looking back, in time and space, saying "Yep, that whole Virgin Galactic thing was a turning point." Kind of like the VIC-20 or TRaSh 80.

Sosa Sucks! The social cost of selfish sport star substance abuse

As yet another big name in baseball gets attached to substance abuse [this time it's some pumped up cheater by the name of Sammy Sosa] I remain stunned by the narrow-minded focus of the media. Sure, some of the better sports writers wrestle with what all this means but most coverage is confined to:

1. The fans (how will they cope with the fall of their idols?)


2. The sport (will people still respect baseball and pay to watch games?)


3. The team (can they win games without the suspended player?)


4. The player (how will it affect his Hall of Fame chances)

I'm tempted to say screw them all, or at least numbers 2 through 4. I'm appalled that nobody seems to care a toss about what this continued abuse of "substances"  means to the people who actually need these substances to stay alive (yes, you can die from adult growth hormone deficiency--see this blog post).

Why doesn't anyone write about how selfish abuse by obscenely overpaid sports-jerks has made Human Growth Hormone (HGH) harder to get for people with medical conditions who legitimately need it to function? How about...

USDA Broadband Discovery Tool

Find what's happening with broadband in your rural community:

USDA Broadband Report Tool

Rural Europeans Duped by "Satellite Broadband"?

Looks like satellite Internet providers in Europe are trying to pass it off as broadband, just like in the US. Sorry guys, Einstein says you can't get latency below 234 milliseconds and you need to deliver 50 milliseconds or less to be broadband.

Top 10 Broadband » News » Satellite broadband 'to boost rural coverage'

Google's Plan for Broadband

"In a filing with the FCC, Google outlined its idea for a National Broadband Plan. Google believes that all American households should have access, by 2012, to at least 5 Mbps upload and download speeds over broadband. The company submitted four proposals to help advance this vision."

Broadband Networking Regulatory News